Can you believe it was 2 YEARS in December since Miss K's last known SVT?!? We didn't celebrate it yet, it's been way too crazy the last few months and we completely forgot :(, hoping to have a cake for her soon though :).
First off the appointment went very well. Miss K climbed right up on the scale without complaint, even stood perfectly for her height measurement. And when it came to getting the EKG done she completely shocked me! Just last appointment, 6 months ago, she screamed and cried about having the "stickers" put on her and I had to hold her while we did the whole EKG. Today I asked her if we could put the "stickers" on her chest and she said "yes!", she let me put her on the exam table without any complaint and she laid right down and lifted her shirt up. She was so good, she held perfectly still for the EKG, she complained that the blood pressure cuff hurt her, which is not normal, but I think the nurse had it on a bit too tight, and she didn't like having the stickers taken off by us, she insisted on doing it herself and that was just fine, she pulled all 13 of them off all on her own without tears.
|I even got to take a quick picture of Miss K today, something not likely to happen in the past :)|
The EP Cardiologist came in and said everything on her charts looks great. He listened to her heart and said she sounded wonderful. He was very happy with her today.
Having 3 kids in the office together makes talking very hard so I didn't get to really ask a lot of info about Miss K but I did get a few things clarified. The first thing he said was that she hadn't gained enough weight to worry about medication dosing, I told him we were going on 2.5 years on the same doses and just over 2 years SVT free and we both agreed this is a great sign and that there is no reason to change her medications. My only regret is that I didn't get to ask him why we couldn't try lowering them, or even try dropping the Digoxin, he didn't even go the direction of mentioning it himself which makes me think the PJRT must still be showing it's ugly self on her EKG, but I didn't get to ask him if this was the case with all the chaos of my 3 kiddos running around the room :(. I did get to ask him my main question. I have been wondering about the Catheter Ablation with Miss K nearing age 4. In the past he has mentioned she'd likely have one around age 5, we're so very close to that age and I couldn't stand not asking him about it a little more in depth. So we talked about when and why to do one. He said he has done them on kiddo's Miss K's tiny size but only in dire circumstances where it was deemed quite necessary. That's just fine with me, I am most definitely not asking him to do one now. He said he really wants her to weigh 15 kilograms (about 40 pounds) and be age 5 or older. He actually mentioned that height is more a factor to look at than weight, so say if a 5 year old is not 40 pounds but she is at average height or taller for a 5 year old then an ablation would be more than OK to consider. But Miss K is so teeny tiny, she's most definitely not going to be 40 pounds around age 5, and going off her current height it's very unlikely she'll be "average" at that age either, she's very short compared to her older brother when he was her age (i.e. when Big Brother was 3.5 years old he had to have a 4T size pant to accommodate his length otherwise he'd have "floods" or "high water jeans"...Miss K is age 3.5 and she is still in a 2T pant because 3T are WAY too long). Doing an ablation on a teeny tiny child presents risks, mostly a huge risk of not getting a vessel or two ablated because they were too small to see, thus guaranteeing a return of the SVT episodes sooner or later (likely sooner), but if we wait until she's quite a bit bigger he'll be much more likely to successfully get every little vessel that is causing the SVT's and thus preventing further SVT episodes at all in her future.
So, we keep up with the medications as they are. No plans for an ablation in the immediate future, the EP Cardiologist says around age 7 may be a better estimate for Miss K.
And the best news?! He officially said "I don't want to see you for a year!", the first time he's ever said those words :). We don't have to go back in 6 months :). This is a huge step for Miss K, we've been waiting for him to say "don't come back for a year" rather than "come back in 6 months, unless you think she's doing OK then you can wait a year". We're so happy to hear this :).